Posts

Showing posts from May, 2024

This is why I think long term outcomes vary widely for people with this condition - this is the most hopeful thing you will ever read about TMAU

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   So, I have been thinking for a while now about the long term life outcomes for people with this condition, and if they vary widely. My conclusion is that they likely vary in a truly dramatic way based on whether or not someone is able to find love, get married and have their own family, or if they are completely cut off from this. Most people posting here are young, and I don't think most people understand how what matters to them will change as they get older, in dramatic ways. It is certainly possible to understand this at a young age though. I understood it as soon as the unimaginable reality of this situation dawned on me at 18, and why I knew I needed a cure, which I was incredibly fortunate to receive through major dietary change. This is a long post, but I think its well worth taking the time to read, since the topics it covers are so important. For most people, in

Important advice about visiting a doctor about this condition

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   One of the major problems people with this condition have is that doctors claim they can't smell them and dismiss them. I have what I think is some important advice on getting around this. The most important thing is to use correct medical terminology when describing your problem. If you just show up to the doctor and say that you have a malodor problem, there is a good chance that the doctor will not even be convinced that is a real thing. Combine this with possibly not being able to smell you, and they will likely dismiss you as having some kind of delusion. The term TMAU is mostly being used here as general term for any malodor condition. This is NOT the medically accurate term to use unless you have the true form of TMAU. The true form means you can't convert TMA into TMAO. You would respond positively or negatively based on the amount of choline in your diet, as

How to make doctors and family believe you - you need to get video evidence of people's reactions

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   This post is about using hidden cameras to record peoples reactions to you. Laws about this vary from place to place and you MUST research and follow them at all times. Openly recording people with a phone is an alternative option to this. Everyone reports that doctors and often family members say this condition only exists in their head. So my idea is to use hidden cameras (see the legal disclaimer at the top of this post) to get the video evidence you need to prove them wrong. If people say this is in your head because the psychological barrier to telling someone they smell bad is so high, this will force their hand. If the smell is intermittent, and that's why doctors say you don't have a problem, this should get around that. I don't actually have any experience with hidden cameras, so you will have to research this, after you research the laws concerning this.

Search for medical treatments, and then look for doctors who provide them - post about underarm sweat gland removal

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   So, many people go from doctor to doctor looking for a cure. In the modern age at least, there are likely no medical treatments where there is just one magic doctor who is capable of offering them. So look online to research what medical treatments are available for this, and then seek out a doctor who can offer it. The main thing that is available is to have your underarm sweat glands removed/destroyed/shrunk. Botox is a treatment, but something called Miradry seems to be the best treatment for this at the moment. There are serious concerns about going this route. I have read many horror stories about people with Hyperhidrosis either getting getting their sweat glands removed, or else the nerve controlling it clamped down (if my memory is correct), and getting massive compensatory sweating. So, after a few months the body finds another way to get rid of the sweat, and its us

Idea that the problem may actually be milder than you think - very important post for everyone

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   Here is the idea I just had: I was wondering about the issue of how people usually report that different people have widely varying responses to being on the receiving end of people with this condition. When there is smell that is bad, but also SUBTLE, people tend to have very widely varying responses to it. I have always been quite sensitive to subtle bad smells, in spite of having a history of this condition myself. This is part of the reason I never blamed anyone for reacting badly to me. There is a subtle perspiration scent that only comes after doing physically strenuous exercise/work, and does not result from sweating from heat (I could do a post on this), when talking about normal people with no TMAU like disorders. This smell is subtly bad, but I personally hate it (if coming from myself) and can't stand it, and this is the kind of thing where peoples responses wi

Idea of making small, incremental changes to deal with this condition

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice. So, I have a new idea that came to me. It sounds like most people are looking for one single thing that is going to cure them. It occurred to me that a much more realistic approach would be to look for a large number of things that each make a small, but noticeable improvement, adding up to a major improvement. So instead of hoping that eating some probiotic yogurt is going to cure your condition, hope for a 5% improvement from it. Look for a large number of areas to get these 5% improvements, and it will add up to something major. In my case, I cured my problem 20 years ago through dietary change (see my profile for my posts if you are interested), but I think the approach I lay out here is promising for people who can't find one major thing that cures them. Here are ideas for things to look at with the goal of getting a large number of small improvements: - Supplement

Important hygiene area that most people don't understand - sweat from rear area

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   Hi, about 20 years ago I solved my problem through a diet that I recently posted about on this forum [Reddit]. Once I entered into the long term phase of the diet, I reached a point where I was able to make decisions about whether I wanted to do an extremely pure, clean diet where deodorant was not even needed, or a more moderate one. I learned some important things through this that most people are not aware of. One of the areas that you have apocrine sweat glands is in your anal area. There is one popular source claiming this is not the case (I forget which) but the real medical sources make clear that there are indeed aprocine sweat glands there. It is the apocrine glands that release sweat that will smell because there are some animal products in there, that are acted on by bacteria. What I have learned is that the smell of the sweat in the anal area does indeed vary base

Idea of Zoom friends for people with this condition

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.  So, I had a post a couple months ago where I proposed that people with this condition solve the problem of their isolation by physically moving near other sufferers, to create real life social circles. This post is a much less extreme version of that concept (which I don't see any evidence is going anywhere). That original post is here: https://www.reddit.com/r/TMAU/comments/17q2xab/i_believe_i_have_found_the_solution_for_people/ My proposal is that people use Zoom, or other similar video chat tools to make online friends within this community. I am not talking about people actually moving near each other which I understand has all sorts of challenges and drawbacks that I won't elaborate on here. So, the basic idea is that the foundation for a real community of people exists here, but this potential is not actually being used. I do not expect that the broader society i

How to properly evaluate reactions from people - important information

DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.  Hi, I just made a post about how I solved my problem about 20 years ago through a vegan diet. I did the diet in my senior year of high school, and when I started college the next fall, I had to go through a period of a least a few months where I had to very carefully gauge other peoples reactions, to confirm that the diet really had worked as I thought it had. I learned a lot about properly evaluating peoples reactions in regards to this issue. This post should be of interest to anyone with this condition. You have my permission to repost this anywhere you want, as long as it is unedited. I recommend copying the text of this post to a text editor on your computer, in case this vanishes from the internet for some reason. Now, the first thing I have to say is that the foundation for believing you have a TMAU like disorder MUST be based on people actually making comments about it,

How to make any restrictive diet much easier - improve the quality of the food

DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice. I made a long post about the vegan diet that solved my problem, and the topic of improving the quality of food to compensate for restrictions is in there, but I think this topic deserves a separate post. Virtually any restrictive diet, unless it is just raw vegetables/fruit, can be made dramatically more enjoyable by improving the quality of the food, to compensate for the restrictions. The examples I give will be from the vegan diet I followed, but the basic concept applies to virtually any restrictive diet you are following. The quickest and easiest way is to simply buy more high end versions of products, but what you really want is to make things from scratch. For example, a soup you make from scratch, with a long cooking time, and fresh ingredients, will be far better than some campbells soup you grab off a shelf at a store. A (from scratch) vegan soup, that skips spices and

Idea of communal living for TMAU sufferers

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice. A few months ago I made a long post about the diet I used to successfully eliminate this condition about 20 years ago. (see my profile for that post, and other posts I think may be helpful as well). I have been thinking a lot about options for people who are not able to cure their problem through dietary change. They may only get a partial solution that still leaves them with a significant problem, or they may require a diet too extreme to maintain it for life. The other day I believe I have come up with a real solution. The idea is that people with TMAU need to move to live near one another, or with each other. If just 10 people organized online and moved to no more than say a 30min drive from each other, you would have a real social network and would no longer be isolated. If this worked well, other people would likely be inspired to do the same thing, and soon there would be