Posts

How to make doctors and family believe you - you need to get video evidence of people's reactions

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   This post is about using hidden cameras to record peoples reactions to you. Laws about this vary from place to place and you MUST research and follow them at all times. Openly recording people with a phone is an alternative option to this. Everyone reports that doctors and often family members say this condition only exists in their head. So my idea is to use hidden cameras (see the legal disclaimer at the top of this post) to get the video evidence you need to prove them wrong. If people say this is in your head because the psychological barrier to telling someone they smell bad is so high, this will force their hand. If the smell is intermittent, and that's why doctors say you don't have a problem, this should get around that. I don't actually have any experience with hidden cameras, so you will have to research this, after you research the laws concernin...

Search for medical treatments, and then look for doctors who provide them - post about underarm sweat gland removal

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   So, many people go from doctor to doctor looking for a cure. In the modern age at least, there are likely no medical treatments where there is just one magic doctor who is capable of offering them. So look online to research what medical treatments are available for this, and then seek out a doctor who can offer it. The main thing that is available is to have your underarm sweat glands removed/destroyed/shrunk. Botox is a treatment, but something called Miradry seems to be the best treatment for this at the moment. There are serious concerns about going this route. I have read many horror stories about people with Hyperhidrosis either getting getting their sweat glands removed, or else the nerve controlling it clamped down (if my memory is correct), and getting massive compensatory sweating. So, after a few months the body finds another way to get rid of th...

Idea that the problem may actually be milder than you think - very important post for everyone

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   Here is the idea I just had: I was wondering about the issue of how people usually report that different people have widely varying responses to being on the receiving end of people with this condition. When there is smell that is bad, but also SUBTLE, people tend to have very widely varying responses to it. I have always been quite sensitive to subtle bad smells, in spite of having a history of this condition myself. This is part of the reason I never blamed anyone for reacting badly to me. There is a subtle perspiration scent that only comes after doing physically strenuous exercise/work, and does not result from sweating from heat (I could do a post on this), when talking about normal people with no TMAU like disorders. This smell is subtly bad, but I personally hate it (if coming from myself) and can't stand it, and this is the kind of thing where peopl...

Idea of making small, incremental changes to deal with this condition

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice. So, I have a new idea that came to me. It sounds like most people are looking for one single thing that is going to cure them. It occurred to me that a much more realistic approach would be to look for a large number of things that each make a small, but noticeable improvement, adding up to a major improvement. So instead of hoping that eating some probiotic yogurt is going to cure your condition, hope for a 5% improvement from it. Look for a large number of areas to get these 5% improvements, and it will add up to something major. In my case, I cured my problem 20 years ago through dietary change (see my profile for my posts if you are interested), but I think the approach I lay out here is promising for people who can't find one major thing that cures them. Here are ideas for things to look at with the goal of getting a large number of small improvements: - Suppl...

Important hygiene area that most people don't understand - sweat from rear area

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   Hi, about 20 years ago I solved my problem through a diet that I recently posted about on this forum [Reddit]. Once I entered into the long term phase of the diet, I reached a point where I was able to make decisions about whether I wanted to do an extremely pure, clean diet where deodorant was not even needed, or a more moderate one. I learned some important things through this that most people are not aware of. One of the areas that you have apocrine sweat glands is in your anal area. There is one popular source claiming this is not the case (I forget which) but the real medical sources make clear that there are indeed aprocine sweat glands there. It is the apocrine glands that release sweat that will smell because there are some animal products in there, that are acted on by bacteria. What I have learned is that the smell of the sweat in the anal area do...

Idea of Zoom friends for people with this condition

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.  So, I had a post a couple months ago where I proposed that people with this condition solve the problem of their isolation by physically moving near other sufferers, to create real life social circles. This post is a much less extreme version of that concept (which I don't see any evidence is going anywhere). That original post is here: https://www.reddit.com/r/TMAU/comments/17q2xab/i_believe_i_have_found_the_solution_for_people/ My proposal is that people use Zoom, or other similar video chat tools to make online friends within this community. I am not talking about people actually moving near each other which I understand has all sorts of challenges and drawbacks that I won't elaborate on here. So, the basic idea is that the foundation for a real community of people exists here, but this potential is not actually being used. I do not expect that the broader soc...

How to properly evaluate reactions from people - important information

DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.  Hi, I just made a post about how I solved my problem about 20 years ago through a vegan diet. I did the diet in my senior year of high school, and when I started college the next fall, I had to go through a period of a least a few months where I had to very carefully gauge other peoples reactions, to confirm that the diet really had worked as I thought it had. I learned a lot about properly evaluating peoples reactions in regards to this issue. This post should be of interest to anyone with this condition. You have my permission to repost this anywhere you want, as long as it is unedited. I recommend copying the text of this post to a text editor on your computer, in case this vanishes from the internet for some reason. Now, the first thing I have to say is that the foundation for believing you have a TMAU like disorder MUST be based on people actually making comments a...

How to make any restrictive diet much easier - improve the quality of the food

DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice. I made a long post about the vegan diet that solved my problem, and the topic of improving the quality of food to compensate for restrictions is in there, but I think this topic deserves a separate post. Virtually any restrictive diet, unless it is just raw vegetables/fruit, can be made dramatically more enjoyable by improving the quality of the food, to compensate for the restrictions. The examples I give will be from the vegan diet I followed, but the basic concept applies to virtually any restrictive diet you are following. The quickest and easiest way is to simply buy more high end versions of products, but what you really want is to make things from scratch. For example, a soup you make from scratch, with a long cooking time, and fresh ingredients, will be far better than some campbells soup you grab off a shelf at a store. A (from scratch) vegan soup, that skips spices ...

Idea of communal living for TMAU sufferers

  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice. A few months ago I made a long post about the diet I used to successfully eliminate this condition about 20 years ago. (see my profile for that post, and other posts I think may be helpful as well). I have been thinking a lot about options for people who are not able to cure their problem through dietary change. They may only get a partial solution that still leaves them with a significant problem, or they may require a diet too extreme to maintain it for life. The other day I believe I have come up with a real solution. The idea is that people with TMAU need to move to live near one another, or with each other. If just 10 people organized online and moved to no more than say a 30min drive from each other, you would have a real social network and would no longer be isolated. If this worked well, other people would likely be inspired to do the same thing, and soon there...

A more general theory behind the diet I used - the idea of accumulated buildups

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DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.   A more general theory behind the diet I used - the idea of accumulated buildups: I recently made a long post (with a couple long replies adding to it) about the vegan diet I used to solve this problem for myself about 20 years ago. I wanted to make a post about the basic theory behind it that would apply to any diet to deal with this condition, beyond simply vegan ones. The basic idea is that if the body can't properly process something it can either immediately get rid of it anyway it can, through the sweat and breath, or it can allow it to build up in the system. The body only uses sweat/breath to eliminate things as a last resort. The body and brain have enough intelligence to know this will cause a person a lot of trouble. So the body will allow something it can't process correctly to build up until there is no more room, and only then will it start getting ...

Suggestion for FBO sufferers to isolate the cause

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  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.  My quick suggestion is to try wearing a pair of Depends (or other brands) incontinence underwear. If there is any noticeable reduction in the smell at all, then you have likely established that actual fecal material in your colon/rectum is the issue. This will dramatically alter the course of treatment you attempt, as opposed to if the smell is coming out through your pores or sweat. Trying enemas to see if clearing out the fecal material gets rid of (or at least improves) the smell is another idea, a user here is doing that. EDIT: I am suggesting trying an enema to try and see if fecal material in the colon is the root cause. I am not suggesting you start using daily enemas to control this, as that has all sorts of potential negative consequences. You have to very carefully approach the idea of doing that.

The key to knowing you really have this condition and that it is not in your head - very important post for everyone to read!

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  DISCLAIMER:  I am not a doctor or medical professional of any kind, and nothing here is medical advice.  UPDATE: I am going to be making a post soon on what a proper hygiene routine looks like. Make sure you check out that post to rule that out as a possible alternative to having TMAU. I think the vast majority of people here really have TMAU or a related condition. However, I am sure there is a certain percentage of people here who believe they have this condition, but it is really all in their head. These people can be CURED and quickly, which is why identifying them has to be a top priority. The key to knowing this condition is real and not in your head is to have a history of comments made about it. You MUST have a history of very clear comments about a bad smell made either in your presence, or better yet, right to your face, in order to conclude you really have this. The comments need to be ongoing as well, to rule out a past odor issue that no longer exits....

Why I do NOT think this condition is metabolic after all

   I just made a post a few days ago [on reddit] about having medical researchers try to get to the bottom of this class of conditions, and I said how the liver is the most likely culprit. I did some more thinking, and I came up with a major new way of thinking about this issue. The case I will make here is that this is actually not a class of metabolic disorders, but rather the body is intentionally creating the smell for the same reasons it creates apocrine sweat and underarm/pubic hair to amplify smells - it smelled good to people 500,000 years ago, but the body has not done away with it yet. If correct, this changes the direction that medical researchers need to go. I want to say at the start that I am NOT a doctor or scientist or medical researcher. What follows are my opinions, and they are meant to be debated and discussed, not just blindly accepted as proven facts. ---------------------------- EVIDENCE AGAINST THIS CONDITION BEING A METABOLIC DISORDER: The tr...